Well we had Aiden re-tested for his Allergies. Our new Allergist wanted to do a RAST and skin prick test. So we started with the Blood test on the 6th of August. I got the results mailed to me and was so disappointed. It came back with him allergic to Almond, Apple, Banana, Barley, Beef, Cashew, Corn, Egg, Milk, Oat, Peach, Peanut, Pecan, Pistachio, Salmon, Shrimp, Soybean, Tomato, Tuna, Walnut, and Wheat. I had an appointment with the allergist on the 14th and was so dissapointed I did not even know if there was a point...but I of course still went.
The Allergist went over Aidens results with me, and come to find out there are numbers associated with each allergen and everything and the following are all ones that he thought we should test for skin test to see if we could add: Apple, Banana, Corn, Peach, Pecan, Salmon, Soybean, Tomato, and Tuna. It came back that he can now add ALL OF THOSE!!!
We have started with Corn! Seeing as Corn Syrup is just about everything! We can only add in one at a time and then wait a week before we add the next one. We want to make sure there is no reaction before we add in the next thing. So far so good! He has had Dum Dums for the first time in over a year, he used to love them! He has also had pickles, otter pops, orange juice that has corn syrup, Cere-os! All necessary things! :D We tried marshmellows but he thought they were yucky. It has been fun to give him things that are fun! Next week is Soy week and I'm already excited!
I created this blog to publish everything I know about Aiden and his allergies! To read more and see pictures of our whole family then click on the link on the right handside under Our Family Webpage!
Aiden
Our Family Webpage
Summary of learning Aiden has Severe Food Allergies
May 28, 2007 is a day that I will never forget. Aiden had not been eating well and he then started acting lethargic for a few days. In addition we had been seeing his pediatrician for eczema and a diaper rash that we could not get control of. We took him to the Instacare and Nine hours later Aiden was admitted to McKay Dee hospital because he was dehydrated and his sodium levels were low. Thirty hours later they came in and told us that Aiden's liver was failing and we needed to get him to Primary Childrens. We took an ambulance there and they brought him straight in and about twenty minutes later there was 5 or 6 doctors in there asking me questions and throwing things back and forth between each other. At this time I knew my son was critical…but a couple weeks later is when I found out that the doctors did not expect my son to live and they were frantically trying to save his life.
Within the next couple of weeks he continued to get worse in some ways, but improve in others. He ended up being on oxygen, having a catheter and even having a blood/albumin transfusions. He had a PICC line placed, scope, Colonoscopy, Skin Biopsies, Ultra Sounds and an Echo within the next couple weeks but the doctors found nothing to explain what was going on with Aiden. They did find that the eczema was partially malnutrition because he body was unable to absorb the nutrients he needed. They finally put him on Neocate and then he started improving. June 14th Aiden was discharged from the hospital with no answers to what was going on…they had sent some blood for some allergy testing and we were told to wait for the results. At our follow-up with the Allergist we found out that Aiden had severe food allergies. He is allergic to Eggs, Milk, Wheat, Peanuts, Oat, Soybean, Corn, Tomato, Orange, Apple, Beef and some environmental allergies as well. It’s been almost a year since this all happened and Aiden is still on Neocate through a G-Tube, but he is doing wonderful! He is a healthy active little boy, he can only eat a few things but that does not slow him down! We do have the day to day trials with hooking up to the pump every night and accidental reactions to things but I guess it’s just life for us!
Within the next couple of weeks he continued to get worse in some ways, but improve in others. He ended up being on oxygen, having a catheter and even having a blood/albumin transfusions. He had a PICC line placed, scope, Colonoscopy, Skin Biopsies, Ultra Sounds and an Echo within the next couple weeks but the doctors found nothing to explain what was going on with Aiden. They did find that the eczema was partially malnutrition because he body was unable to absorb the nutrients he needed. They finally put him on Neocate and then he started improving. June 14th Aiden was discharged from the hospital with no answers to what was going on…they had sent some blood for some allergy testing and we were told to wait for the results. At our follow-up with the Allergist we found out that Aiden had severe food allergies. He is allergic to Eggs, Milk, Wheat, Peanuts, Oat, Soybean, Corn, Tomato, Orange, Apple, Beef and some environmental allergies as well. It’s been almost a year since this all happened and Aiden is still on Neocate through a G-Tube, but he is doing wonderful! He is a healthy active little boy, he can only eat a few things but that does not slow him down! We do have the day to day trials with hooking up to the pump every night and accidental reactions to things but I guess it’s just life for us!
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